My Moves Matter

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My Moves Matter is an app created by someone with Parkinson’s. They aim to empower everyone who has Parkinson’s to live their best lives through understanding their individual needs and being able to share those needs to get the right care. It is the only app that tracks Parkinson’s symptom changes across the menstrual cycle. But it’s not only for women.

By providing you with detailed insights into how your medications, exercise routines, menstrual cycle and menopause affect your Parkinson’s symptoms, the app empowers you to make informed decisions about your health.

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Features

  • Created by someone with Parkinson’s
  • Monitor the progress and fluctuations of both motor and non-motor symptoms
  • Track your medication intake and timings to understand its impact on your symptoms
  • Track periods and exercise: see how hormonal changes and physical activity influence your health
  • Journaling feature supports text, voice-to-text and video entries
  • Share your insights with your neurologist, nurse or therapists so they can optimise your treatment
  • Is it a registered medical device? No

Categories

Product type
  • App
Helps with
  • Doing physical activity
  • Understanding my condition
  • Recording my progress
  • Taking my pills

Panel review

Quick overview

A simple self-care companion app with innovative multimedia journal features and period tracking but can be difficult to navigate around and setting up medication records can be challenging.

Highs

  • Developed by someone living with Parkinson’s.
  • Journal feature allows you to log activities and symptoms using multiple methods including text, video and voice memo.
  • Can track menstrual cycle alongside Parkinson’s symptoms.
  • Free and available on all Apple and Android smartphones.

Lows

  • Medication set up can be challenging.
  • It can be hard to use the scrolling selectors for medication and symptom tracking.
  • Offers limited insights.

Background

My Moves Matter is a self-care companion app designed to help people living with Parkinson’s take control of their health. It was developed by Richelle Flanagan after she and her team won the DayOne Health Hack 2021 with their idea to create an app that could track the fluctuation of Parkinson’s symptoms during the menstrual cycle with the help of some sort of technology.

First impressions

Set up

Users have to create an account to use the app, which includes answering some basic sign-up questions.

Setting up the app was “fairly easy” for most of our reviewers. The app uses large, easy-to-tap buttons to get around, making navigation to different screens simple.

One reviewer said using the app was “fairly intuitive,” and another described it as “fairly straightforward.”

Issues

All our reviewers had some navigation issues. They complained that the app involved too much scrolling, especially when it came to using the medication and symptom tracking features.

Medication tracking and reminders

All 6 reviewers had some difficulty or concerns with adding their medication to the virtual ‘Medication Cabinet.’

The app includes an extensive list of Parkinson’s medication for you to choose from, but you have to scroll through the whole list to find each medicine you want to add.

A reviewer who was diagnosed a year ago said it “would be good to have a search function for adding medications, rather than having to scroll through a list.” She added that it would have been “helpful” to also be able to add her other non-Parkinson’s medication. She suggested that the option to add a custom medication would have made a big difference.

mymovesmatter-screen shot

Another reviewer also said they would have liked to record their other prescription medication, over-the-counter drugs and vitamins and supplements.

Once you have selected your medication, you can record your dosage, schedule, and take a photo of the medication and its packaging. There is also an option to set medication reminders.

For 1 reviewer, who is affected by lack of coordination and dexterity issues, the medication set up was so “unclear” that she had to contact customer service. She spoke to the founder, Richelle Flanagan, who sent her a ‘how to’ video of entering her medication details correctly. “The video was very clear and helpful. I suggested to her that they might add the video to the [app] for everyone.”

2 of our reviewers liked the medication reminders, but other reviewers had concerns. One noticed that she didn’t always get the alerts on her phone and another found that the medication scheduling did not support the way in which she takes her medication. She explained: “I take my first dose on getting out of bed, whatever time that may be, then I take the next dose approx 2.5 hours later and so on. So having fixed alarm times does not work and I have to use the phone’s timer alarm instead.”

Symptom tracking

To track your symptoms, you have to pick one from another very long list. The symptoms are in categories such as Sleep, Emotion & Feelings, and Movement Coordination. Once you’ve chosen a symptom, you can record what time it happened and how severe it was. Fortunately, there is also a list of your 3 most recent symptoms that can speed this up.

A reviewer commented on the nuisance of having to scroll through so many options: “It is incredibly laborious and requires users to have dexterity to scroll endlessly through options, which is really difficult if you have Parkinson’s.”

This annoyance was shared by a 60-year-old reviewer who said: “This product was super frustrating and I could not work out what benefit I was getting from using it.”

“It was a real nuisance to have to scroll down through the very long list of symptoms to record those not in the ‘recent symptom’ list,” said a reviewer who was diagnosed with Parkinson’s 9 years ago. “It discourages you from tracking symptoms that occur less frequently.”

Features

My Moves Matter allows women to track their Parkinson’s symptoms alongside their period. All our reviewers felt this unique feature was important but some were not sure how helpful it would be for getting support.

Questions

Is there any connection between My Moves Matter and Parkinson’s UK?

Richelle Flanagan (the creator of My Moves Matter) has spoken at Parkinson’s UK events but, no, there is no commercial or financial relationship between us.

We have a series of policies and practices in place to make sure that our review is independent of any existing relationship between our organisations or staff. If you’d like to find out more about this, you can read about it in our transparency statement.

Background information on My Moves Matter

None yet available.

Other frequently asked questions

None yet available.

Details

Cost
  • Up front: Free
  • Subscription: Free
Size
  • 33.1
Version
  • 1.6.1
Phone type
  • Android and iOS